Local family seeks help for ‘Itty Bitty’ baby with rare disorder

Rayland Camp

Rayland Camp

Published: Wednesday, January 23, 2013 at 05:52 PM.

Brittney Camp calls him “Itty Bitty,” but his real name is Rayland.

He’s her four-month-old son and each morning she thanks God he’s still here.

On Sept. 19, Camp and her husband, Reese, both of Milton, welcomed baby Rayland into the world. He was four weeks premature and weighed 4-pounds, 4-ounces. After a blood test, the Camps found out Rayland had a rare genetic disorder. He was born with Rhizomelic Chondrodysplasia Punctata Type 1.

“I was devastated,” Camp said.

Rayland spent six weeks and two days in the Neonatal Intensive Care Unit at Sacred Heart.

Not many people have heard of the disease — Camp said many doctors aren’t even familiar with the rare disorder.

Rayland was born with cataracts in both eyes and he has shortening of the humerus and femur, making his legs and arms short. He has stippling – small holes – in his bones and was given a feeding tube when he was five weeks old. Recently he’s started having seizures.

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